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Elder Care / Work Balance Newsletter: Vol. 7, No. 11


New Book for Persons Caring for Family Members with
Dementia Abounds with Insight, Practical Tips, and Humor

Review: Dementia Caregivers Share Their Stories: A Support Group in a Book by Lynda A. Markut and Anatole Crane, Nashville, TN: Vanderbilt University Press, 2005, with index and a useful Appendix on resources for family caregivers of persons with dementia.

Both family members caring for a person with dementia and professionals who interface with family members will benefit from reading this well-written, insightful book. Dementia Caregivers Share Their Stories derives its power from the stories collected by the authors in conducting support groups for family members caring for loved ones with dementia.

Lynda Markut, a social worker, is manager of workplace support services for the Waukesha County chapter of the Alzheimer's Association. She has run many support groups. Anatole Crane is a retired scientist and caregiving spouse who became co- facilitator of a spouse dementia support group.

Starting with brief descriptions of the most common forms of dementia (Alzheimer's Disease, Lewy Body Disease, Vacular Dementia and Pick's Disease), the content progresses in a more-or-less chronological order, starting with "Early Symptoms and Diagnosis" and exploring a dozen topics ranging from "Who Gives Care and How to Do It" to "The Challenge of Behavior Changes" to "The Final Transition" (coping with the death of the care recipient and the emotional aftermath that accompanies the end of a caregiving relationship).

Throughout, the authors blend personal and professional insights with real-life first-hand accounts of the joys and stresses of caregiving for this population. The chapter on "Maintaining Meaningful Involvement in Life" includes this quote from a caregiver named Bernice: "There is a great deal to be learned about life from the caregiving experience. One of the lessons I had from mom having vascular dementia was to slow down. She couldn't do things with any speed, and, if I tried to speed things up, it just produced frustration, so I would always have to remind myself to get into a lower gear whenever I did anything with Mom. It was a good lesson for me. Whenever I walked or cooked or gardened with her, I got to experience the pleasure in the simple things." Or, as the authors point out in the same chapter, "Responding to a family member with dementia is all about becoming adept at responding to change and loss."

Markut and Crane show us the humor in caregiving, too, as with this holiday anecdote from a caregiver named Renate: "We got a Christmas tree last year and my husband worked and worked to get it to fit in the stand. He finally got it in the stand and brought it into the house. Mom took one look at it and said 'Why are you bringing that damn tree in the house?' That was a really funny moment. We all stopped and just laughed. It was good for us and it was good for Mary (Renate's mom with Alzheimer's disease).

This book has direct relevance for employed family caregivers and for managers who interact with them in the work place. The power of these experienced caregivers' stories helps humanize and normalize the experience of the 4 million-plus (and growing) American families who are coping with caregiving for persons with these very stress-inducing types of diseases.

If you know a family member, co-worker, friend or neighbor who is in this situation - or perhaps a manager at work who would benefit from some real- life insights - I would highly recommend this book as a great holiday gift. For more information, visit www .VanderbiltUniversityPress.com



What do you think? What do you think? Take a moment now to send us an email with your opinion and we will publish your thoughts in the next issue.



John Paul Marosy
Editor and President,
Bringing Elder Care Home, LLC

Member - National Speaker 
Association

John Paul Marosy is the author of Elder Care: A Six Step Guide to Balancing Work and Family, available from Bringing Elder Care Home Publishing online at our Web site or by calling
508-854-0431.



John Paul Marosy

John Paul Marosy, President



Sign Up Now for Jan. '09 Workplace Innovations Teleseminars

Plan now to start the New Year right! Save gasoline, airfare, and hotel costs. Participate in top- quality seminars, moderated by elder/work balance expert John Paul Marosy, from the comfort of your own office or home telephone.

Join us for all three interactive teleseminars featuring new, innovative approaches to supporting family caregivers in the workplace:

Friday, January 16: Caregiver Simulation Project.

Learn how a local chapter of the Alzheimer's Association and the Interfaith Caregiver Network teamed up with businesses to successfully reach managers and employees using an innovative technique that allows employers to "walk a mile in a caregiver's shoes."

Friday, January 16: Caregiver Simulation Project
Lynda Markut, workplace education coordinator
Alzheimer's Association of SE Wisconsin And Kathy Gale, executive director
Interfaith Caregiving Network in Waukesha County, WI

Friday, January 23: Generational Resource Center.

The Council on Aging Silicon Valley puts caregiver support on wheels, bringing information and support to employed family caregivers via a fully- loaded, walk-in vehicle, complete with wireless- access laptops, an information library, and trained advisors.

Don't miss this discussion with Lorraine Larson, manger of community relations, who reveals the keys to success... and the unexpected benefits of taking caregiving on the road.

Friday, January 23: Generational Resource Center
Lorraine Larson
Council on Aging Silicon Valley

Friday, January 30: Elder Life Planning for Organization (ELPO).

Have you ever wanted your organization to provide an eldercare benefit for employers in your area - but didn't know how to put the pieces together? In this teleseminar, Bob O'Toole, founder and CEO of Informed Eldercare Decisions, gives the nuts-and-bolts answers to how you can offer a comprehensive, nationwide elder care benefit for employers in your area - all on a turnkey basis.

Learn how you can create a new revenue stream for your organization while increasing demand for the other services you offer.

Friday, January 30: Informed Eldercare Decisions
Robert O'Toole, CEO
Informed Eldercare Decisions

  • All teleseminars take place at 12:00 noon Eastern (9:00 am Pacfiic) and last for 50 minutes, with a 10 minute Q&A session, open to all registrants.

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